The purpose of this study is to learn more about the day-to-day experiences of dementia caregivers, including how often certain behaviors may happen, situations which you may find stressful and how often good things happen.
Who can participate?
We are asking persons age 18+ who provide unpaid care or assistance to a person with dementia to participate. The caregiver needs to live with the person with dementia. The caregiver also needs reliable access to the internet.
Your decision to participate, and the information we learn from you will help us provide better support in the future to other caregivers and better care and support for people with dementia.
Participation consists of three parts.
Part 1 – Now | Part 2 – In 6 months | Part 3 – In 12 months
For each part you will:
- Complete 1 extended online survey asking about your caregiving situation, health and wellness. It takes about 20 minutes to answer the questions. You will complete this survey online.
- Complete 21 days of short diary surveys asking about what happened on the day before. Diary surveys can be completed by phone or online . These diary surveys will be sent at 7am each day. It takes about 5 minutes to answer the questions. You will have until 11am to finish them. You will receive reminders if you did not complete it. You can continue to participate in the study if you miss or skip a diary; but we ask you to complete as many as you can.
You can choose whether you would like to do the daily surveys by phone or by email. The entire study can be completed at your home. You will be paid for your time.
The research team does not know which survey answers are your answers.
The answers you provide on the research surveys are anonymous. By keeping them anonymous this means that we will not be able to tell which survey is yours, so we will not know how you answered the questions. We do keep track of how many survey you completed, but we cannot link your name or any of your identifiable information (ex: address, phone) to your individual survey answers.
Questions? Contact us at: firstname.lastname@example.org